Long COVID with sleep problems and collapses, somewhat better; cold water bathing helped
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Mar 2023
In their words
- Condition: Long COVID
Almost 3 yrs in. It's better, but not gone.
In context ↗ - Now: Somewhat better
Almost 3 yrs in. It's better, but not gone.
In context ↗ - Began after: COVID
Almost 3 yrs in.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Reddit user Prairie 32318 said they were almost three years into long COVID, with sleep problems and collapses they tried to prevent by relearning limits. By January 2023 they reported being better but not gone, still needing extra sleep and relearning limits. They also used cold water bathing, which they said helped.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- cold water bathing · Helped
Whenever it gets really bad I enforce "slowing down", resting a lot, and cold water bathing. Seems to help us have better days.
In context ↗ - slowing down, resting a lot, relearning limits · Helped
Relearning limits helps me avoid a collapse.
In context ↗
Approaches: Alternative therapies · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.8 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | Long COVID beganAlmost 3 yrs in.In context ↗ | Not stated | |
| 2023-01-14 | reported being better but not goneIt's better, but not gone. Relearning limits helps me avoid a collapse.In context ↗ | Mild | Pacing and the energy envelope |
| 2023-03-27 | cold water therapy helpedI use it. And it does.In context ↗ | Mild | Cryotherapy and cold exposure |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Relearning limits helps me avoid a collapse.
In context ↗ - Sleep problems
I chose to sleep. The extra 3 hrs of sleep means I may actually be more than a walking zombie.
In context ↗
Ask Miruvor AI
Similar stories
-
ME/CFS at rock bottom, now much better but still often in bed with pacing
Cedar 14930 has had ME/CFS for over 30 years, with a sudden flu-like onset, and deteriorated until hitting rock bottom around 11 years before 2020; since then they have improved but remain far from well, often spending 16–23 hours a day in bed and unable to…
-
Housebound with long COVID, now much better and back at work after rest and acupuncture
An Australian academic in their forties got long COVID in May 2024 after a third infection: brain fog first, then crippling fatigue that left them housebound and crashing daily for months. Rest, time and treatments including acupuncture greatly improved…
-
Bedbound two years with ME/CFS, improved then relapsed, now mainly housebound
Ill from age 20 and about 30 years in, they spent two years bedbound in a dark, silent room before improving to severe, then moderate and almost mild. They credited supplements, later no longer available, ketogenic diets, cryotherapy and belly breathing, and…
-
Bedbound about a year with long COVID, now much better after prednisone and acupuncture
A US healthcare worker in their 40s fell ill in winter 2022, days after an iron infusion and suspected COVID, then spent about a year bedbound, unable to swallow or walk. They credit prednisone, vagus nerve stimulation, acupuncture and cold exposure with…