Long COVID
Outcome unclear
Long COVID with MCAS and dysautonomia, worse with stress, tried famotidine and ketotifen
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: Long COVID
This. Exercise and stress infinitely make my MCAS symptoms worse which seems to go hand in hand with my dysautonomia symptoms.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user reports MCAS and dysautonomia symptoms that exercise and stress make worse. They take famotidine (Pepcid) 20 mg twice daily, 40 mg twice daily in a flare, plus 20 mg Claritin each morning and 20 mg Zyrtec at night, a combination they find good, though Zyrtec makes them sleepy. Adding ketotifen 1 mg twice daily they call a game changer for the current flare.
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What they tried
Also tried
Their words about each treatment
- Pepcid · Not said
I take Pepcid 20mg twice a day most of the time but in a flare I take 40 mg twice a day.
In context ↗ - Claritin and Zyrtec · Helped
I seem to find the combo good for me and Claritin doesn't make me sleepy like Zyrtec does.
In context ↗ - ketotifen · Helped a lot
ketotifen 1 mg twice a day has been a game changer, I think, for my current flare
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | long COVID with MCAS and dysautonomia symptomsExercise and stress infinitely make my MCAS symptoms worse which seems to go hand in hand with my dysautonomia symptomsIn context ↗ | |
| 2026-07-04 | current flare improved after adding ketotifenadding ketotifen 1 mg twice a day has been a game changer, I think, for my current flareIn context ↗ | Ketotifen (Zaditen) |
Adverse events
- Loratadine (Claritin), Cetirizine (Zyrtec)“Claritin doesn't make me sleepy like Zyrtec does” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
Exercise and stress infinitely make my MCAS symptoms worse
In context ↗ - POTS & dysautonomia
seems to go hand in hand with my dysautonomia symptoms
In context ↗