Unable to move for two years with ME/CFS, somewhat better after L-carnitine and astaxanthin
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2026
In their words
- At worst: Severe
last 2 years can t move anymore..last half year hart stops beating
In context ↗ - Now: Somewhat better
harts beats normal again in two weeks.. probely can walk after 6 weeks , can t walk for 3 years now
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After about 90 days without sleep, a psychiatric hospital stay with heavy medication and a 50-pound weight loss, this r/cfs user worsened over years, unable to move for two years, unable to walk for three, and with their heart stopping for the past six months. Taking 9 g of L-carnitine tartrate with 36 mg astaxanthin and MitoQ, their heartbeat returned to normal within two weeks; they expected to be able to walk after six weeks.
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What they tried
Also tried
Their words about each treatment
- very heavy meds · Not said
they put me in psychiateric hospital and bound me on bed wuth very heavy meds
In context ↗ - meds · Not said
many things thryd meds sups therapie
In context ↗ - l carnitine tartrate · Helped a lot
i take 9 grams l carnitine tartrate and 36 mg astaxanthine with mitoq.. harts beats normal again in two weeks
In context ↗ - astaxanthine · Helped
36 mg astaxanthine with mitoq
In context ↗
Approaches: Amino acids and carnitine · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | about 90 days with no sleep at all; psychiatric hospital, restrained in bed on heavy medication, lost 50 poundsI didn t sleep about 90 days... zero sleep they put me in psychiateric hospital and bound me on bed wuth very heavy meds.. i lost 50 poundIn context ↗ | Severe | |
| — | years of worsening; could not move for two years, could not walk for three, heart stopping for the last half yearlast 2 years can t move anymore..last half year hart stops beatingIn context ↗ | Severe | |
| — | heart beating normally again two weeks after starting L-carnitine and astaxanthin with MitoQi take 9 grams l carnitine tartrate and 36 mg astaxanthine with mitoq.. harts beats normal again in two weeksIn context ↗ | Severe | L-carnitine |
| — | heartbeat normal; still unable to walk, hoping to walk within six weeksprobely can walk after 6 weeks , can t walk for 3 years nowIn context ↗ | Severe | L-carnitine |
Adverse events
- “they put me in psychiateric hospital and bound me on bed wuth very heavy meds.. i lost 50 pound” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I didn t sleep about 90 days... zero sleep
In context ↗ - Heart symptoms & palpitations
last half year hart stops beating
In context ↗ - Muscle weakness
last 2 years can t move anymore
In context ↗ - Anxiety & low mood
nobody s helping said i was crazy.. reddy to die
In context ↗
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