ME/CFS
No benefit
ME/CFS skin and gut symptoms, still reactive and PEM despite diet and ketotifen
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Now: No benefit
Still super reactive to fragrances/chemicals though
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person suspected they had some sort of MCAS; their awful skin and gut symptoms were ten times better with a low-histamine diet and ketotifen, but they remained super reactive to fragrances and chemicals, and seemed to get PEM after a bad fragrance reaction, though they did not know if that was normal.
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What they tried
Also tried
Their words about each treatment
- low histamine diet · Helped
I had awful skin/gut symptoms previously which are ten times better with a low histamine diet/ketotifen
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2026-06-03 | skin and gut symptoms ten times betterI had awful skin/gut symptoms previously which are ten times better with a low histamine diet/ketotifenIn context ↗ | Moderate | Ketotifen (Zaditen) |
| 2026-06-03 | still highly reactive to fragrances and chemicalsStill super reactive to fragrances/chemicals thoughIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I think I have some sort of MCAS for sure ... Still super reactive to fragrances/chemicals though
In context ↗ - Gut problems
I had awful skin/gut symptoms previously which are ten times better with a low histamine diet/ketotifen
In context ↗