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ME/CFS Outcome unclear

Mild-moderate ME/CFS after over a decade of chronic pain, tried a virtual fatigue course

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Sep 2026
In their words
  • Condition: ME/CFSbefore I was eventually diagnosed with me/cfs and then went through the fatigue service In context ↗
  • At worst: MildI was diagnosed mild-moderate by the NHS last Feb In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Dew 59263 was diagnosed with mild-moderate ME/CFS by the NHS in February 2026, after over a decade of chronic pain managed through a pain clinic. Sceptical at first, they found the ten-session virtual fatigue management course kind of useful, mainly for pacing, though they disliked the CBT and mindfulness parts. They skipped pain clinic group sessions because of fatigue and work.

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What they tried

Their words about each treatment
  • pain clinic virtual physio (CBT/Mindfulness) · No changeI was discharged after 4 sessions as it was essentially just building up a toolkit and how to manage the pain In context ↗
  • NHS fatigue management course (10 session fatigue service course) · HelpedI was fairly skeptical but it actually was kind of useful. In context ↗
  • several medications · Not saidI had a consultant in a different department who I've tried several medications with In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—ME/CFS onset, not describedI was diagnosed mild-moderate by the NHS last Feb In context ↗Not stated
2026NHS virtual fatigue management course helped with pacingThe fatigue service helped a lot more as I was less experienced with pacing. In context ↗MildPacing and the energy envelope
2026-09-15mildly affected, workingwhich I couldn't attend due to fatigue and work schedule In context ↗Mild

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