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ME/CFS Moderate → no benefit

ME/CFS symptoms; eating more and 10-minute daily walks brought no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Apr 2021
In their words
  • Condition: ME/CFSI'm not officially diagnosed yet, but I'm like 99% sure I have it because I have ALL the symptoms. In context ↗
  • At worst: ModerateJust started not taking naps, and I am struggling. In context ↗
  • Now: No benefitWhat little I've done has only made me more tired In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Falcon 93740, posting in r/cfs in April 2021, said they were not yet diagnosed but were 99% sure they had ME/CFS because they had all the symptoms. They had been seeking a diagnosis since late 2020 and were on medication for depression, anxiety and insomnia. Their psychiatrist asked them to eat more, stop napping and walk 10 minutes daily; they had made little progress beyond eating more, and said the little they did made them more tired.

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What they tried

Their words about each treatment
  • eat more · Not said1) eat more (I admit, I'm usually terrible about eating, usually only eating once a day) In context ↗
  • 10 minute walk every day · Worsestarted walking every day for a week last month before I got sick and had to stop In context ↗
  • no more naps · WorseJust started not taking naps, and I am struggling. In context ↗
  • Ambien · Not saidas well as Ambien for my insomnia In context ↗
  • meds for depression and anxiety · Not saidI'm on various meds for depression and anxiety right now In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
late 2020began seeking a diagnosis for ME/CFS symptomsI started this whole diagnosis journey late last year In context ↗
March 2021got sick and had to stop the daily walksstarted walking every day for a week last month before I got sick and had to stop In context ↗
2021-04-11still undiagnosed, struggling with the psychiatrist's suggestionsWhat little I've done has only made me more tired In context ↗

Adverse events

  • “What little I've done has only made me more tired” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsas well as Ambien for my insomnia In context ↗
  • Anxiety & low moodI'm on various meds for depression and anxiety right now In context ↗

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