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Long COVID Somewhat betterIll 2 years before improving or writing

Long COVID severe migraines and visual snow; headaches somewhat better, vision unchanged

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
2 years
Last post
Nov 2023
In their words
  • Condition: Long COVIDI've developed VSS since March but I feel it is the result of long covid. In context ↗
  • Now: Somewhat betterit seems more or less the same since it first happened ... Headaches have improved since and my sense of balance. In context ↗
  • Began after: COVIDI feel it is the result of long covid.
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Neurological long-COVID symptoms began with tinnitus in late 2021, followed by head pressure, visual snow, palinopsia and severe cluster migraines from early 2022. The migraines stopped after several months, leaving only occasional minor headaches by December 2022. A year later headaches and sense of balance had improved, though visual snow was more or less unchanged. They hoped their vision would return to normal.

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Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
late 2021tinnitus began, on and offI did have tinnitus issues late 2021 which subsided for a bit then came back again this year, constantly on and off. In context ↗
February 2022head pressure, then visual snow and terrible cluster migrainesIn February I was feeling some head pressure near my left temple for weeks. It then developed into visual snow like symptoms followed by terrible cluster migraines around my eyes. In context ↗
December 2022migraines stopped, only minor headaches; phosphenes improved but not goneThe migraines have stopped for several months now and I mainly experience minor headaches every now and again. In context ↗
November 2023headaches and sense of balance improved; visual snow and palinopsia unchangedHeadaches have improved since and my sense of balance. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Vision problemsI've had VSS like symptoms since March 2022 and they haven't gone away. In context ↗
  • Headaches & migraineThe migraines have stopped for several months now and I mainly experience minor headaches every now and again. In context ↗
  • TinnitusI did have tinnitus issues late 2021 which subsided for a bit then came back again this year, constantly on and off. In context ↗
  • POTS & dysautonomiaHeadaches have improved since and my sense of balance. In context ↗

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