ME/CFS
Severe → near normal
Bedridden with ME/CFS and out of school for years, now almost back to normal
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- a few years
- Last post
- Jan 2024
In their words
- Condition: ME/CFS
https://www.reddit.com/r/cfs/comments/192cews/coping_with_the_prolonged_mental_toll/ ... to barely being able to walk to the toilet from my bed
In context ↗ - At worst: Severe
to barely being able to walk to the toilet from my bed ... my bedroom became my prison cell
In context ↗ - Now: Near normal
There was no linear recovery but I’m finally in a place where I can just about function as a normal human, discounting the strenuous physical toll that years of being bedridden had on my body.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A competitive swimmer training twice daily for nationals, they became barely able to walk from bed to the toilet and spent years bedridden and out of school. Recovery was not linear, but by January 2024 they could just about function as a normal human, though years in bed had taken a physical toll. The mental cost remained: lost social skills and confidence, damaged relationships and a drinking problem that worsened since starting university.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | onset in school; from twice-daily swim training to bedriddenI went from training for Swimming nationals at 5am every morning before school and 7pm after, to barely being able to walk to the toilet from my bed.In context ↗ | Severe |
| 2024-01-09 | improved slowly; now about functioning as a normal human, still struggling with mental tollThere was no linear recovery but I’m finally in a place where I can just about function as a normal human, discounting the strenuous physical toll that years of being bedridden had on my body.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
barely being able to walk to the toilet from my bed
In context ↗ - Anxiety & low mood
My social skills and confidence have all but evaporated, I’ve become nasty and bitter towards those around me
In context ↗