Mild to moderate ME/CFS for a decade, still mild to moderate after Mounjaro
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 11 years
- Last post
- Sep 2025
In their words
- Condition: ME/CFS
CFS is slowly robbing my career
In context ↗ - At worst: Mild
Mild bordering onto moderate. Been symptomatic for a decade but had all over been getting worse in the last couple years.
In context ↗ - Now: No benefit
I’m getting worse even with pacing
In context ↗ - Began after: nothing they could name
Been symptomatic for a decade but had all over been getting worse in the last couple years.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Coast 18732 had been symptomatic for about a decade and was diagnosed with ME/CFS a year before posting in mid-2024, when they were mild bordering on moderate and cutting their hours as a newly qualified veterinary nurse. A hormonal IUD caused cramping but no lasting PEM. Mounjaro caused gastritis and pancreatitis and was stopped, though they kept off about 10lb. By mid-2025 they were still mild to moderate, with somewhat more energy.
Ask Miruvor AI
What they tried
Their words about each treatment
- pacing · No change
I’m getting worse even with pacing
In context ↗ - Visible app · No change
I used the app but stopped wearing it because all it did was tell me to stop all the time.
In context ↗ - mounjaro · Worse
I ended up getting gastritis & pancreatitis from it and was very sick and stopped taking it.
In context ↗ - hormonal IUD · No change
I have the hormonal IUD and it was fine. I had some cramping, the actual insertion felt like a bad period cramp, but i didn’t have any long lasting pain or pem
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~2014 | Symptoms began, no trigger identifiedBeen symptomatic for a decade but had all over been getting worse in the last couple years.In context ↗ | Not stated |
| 2024-06-29 | Worsening despite pacing; cutting hours as a veterinary nurseMild bordering onto moderate. ... I’ve already cut my hours to as little as I can afford.In context ↗ | Mild |
| 2025-04-11 | More energy over the previous six weeksI think I’ve had more energy since being on it the last 6 weeksIn context ↗ | Mild |
| 2025-06-08 | Still mild to moderate; hormonal IUD toleratedConversely, I am mild - moderate and I have the hormonal IUD and it was fine.In context ↗ | Mild |
Adverse events
- IUD (hormonal or copper)“I had some cramping, the actual insertion felt like a bad period cramp, but i didn’t have any long lasting pain or pem” In context ↗ Side effects
- Tirzepatide (Mounjaro, Zepbound)“I ended up getting gastritis & pancreatitis from it and was very sick and stopped taking it.” In context ↗ Gut side effects
- Tirzepatide (Mounjaro, Zepbound)“I ended up getting gastritis & pancreatitis from it and was very sick and stopped taking it.” In context ↗ Other