ME/CFS
Moderate → no benefit
CFS crash after a long walk, worse despite careful pacing
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Dec 2016
In their words
- Condition: ME/CFS
So my CFS has been getting a lot worse, despite pacing correctly.
In context ↗ - At worst: Moderate
I find I can do about an hour of activity on a normal day, and then after that, I can barely stand up.
In context ↗ - Now: No benefit
So my CFS has been getting a lot worse, despite pacing correctly.
In context ↗
Summary
A person with CFS described crashing after a walk far longer than usual, collapsing on the bed for several hours and still tired after a two-hour nap. They later said they felt better and were pacing themselves carefully. Two weeks later they reported their CFS getting a lot worse despite pacing correctly: after about an hour of activity they could barely stand, their muscles felt unusable, they slept much of the day and could not get to the store.
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What they tried
Also tried
Their words about each treatment
- pacing · Helped
I feel a lot better today, am remembering to pace myself correctly
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2016-11-17 | collapsed for hours after a longer-than-usual walkso I stayed out far longer than I usually do, but it costed meIn context ↗ | Moderate |
| 2016-11-18 | felt much better the next day, pacing carefullyI feel a lot better today, am remembering to pace myself correctlyIn context ↗ | Moderate |
| 2016-12-03 | CFS worse despite pacing; about an hour of activity a day, then could barely stand; slept much of the day; could not get to the storeSo my CFS has been getting a lot worse, despite pacing correctly.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
so I stayed out far longer than I usually do, but it costed me
In context ↗ - Muscle weakness
It feels like my muscles have gone completely weak, and they feel unusable.
In context ↗ - Sleep problems
I'll sleep a full night and then wake up, be awake for a few hours, and then fall back asleep for another 3 hours
In context ↗ - POTS & dysautonomia
my entire body felt extremely weak like I'd pass out
In context ↗