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ME/CFS Severe → near normal

Bedbound with ME/CFS, now close to normal after nervous-system retraining and IV infusions

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Jul 2025
In their words
  • Condition: ME/CFSI’ve moved from cfs to just someone who’s “unfit” In context ↗
  • At worst: SevereI’m no longer bed bound In context ↗
  • Now: Near normalI’m no longer bed bound and I can confidently say I’ve moved from cfs to just someone who’s “unfit” In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person posting in r/cfs in July 2025 said they had been bed bound with ME/CFS but were no longer, calling themselves 'just someone who's unfit' with extreme fatigue now rare apart from their period or when ill. They credited nervous-system retraining from a YouTube 'cfs recovery' channel, IV Myers cocktail infusions to kickstart their immune system, sunlight, a sleep routine, anti-inflammatory food and gentle stretching.

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What they tried

Their words about each treatment
  • Allowing myself to be tired · Not saidAllowing myself to be tired. In context ↗
  • Retraining myself to not react to the symptoms · Not saidRetraining myself to not react to the symptoms but work with them. In context ↗
  • IV mayers cocktail infusions · Helped a lotA big changer for me was getting IV mayers cocktail infusions to kickstart my immune system. In context ↗
  • sun · Not saidGet sun! Really. In context ↗
  • nourishing foods to lower inflammation · Not saideat nourishing foods to lower inflammation In context ↗
  • vitamins · Not saidreplenish your vitamins if you can In context ↗
  • good sleep routine · Not saidGet a good sleep routine In context ↗
  • Push yourself safely and recover safely · Not saidPush yourself safely and recover safely. Ever so gently move your body. Start with stretching In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—bed bound with CFSI’m no longer bed bound In context ↗Severe
2025-07-04moved from CFS to feeling 'unfit', fatigue now rareI’ve moved from cfs to just someone who’s “unfit” very rarely do I get that extreme fatigue feeling unless I have my period or I’m sick In context ↗Near normalIV vitamins and Myers cocktail

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