ME/CFS
Mild → no benefitIll for 6 months
Six months of constant exhaustion with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 6 months
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
29M with chronic fatigue after glandular fever.
In context ↗ - At worst: Mild
I still work full time for a homeless charity, but I only manage this intense job through lots of masking and caffeine + nicotine. I'm constantly tired to the point it feels like I'm living a half existence
In context ↗ - Now: No benefit
After catching glandular fever earlier this year, I've faced 6 months of pure exhaustion and it feels like I won't survive for much longer.
In context ↗ - Began after: glandular fever or EBV
After catching glandular fever earlier this year
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 29-year-old man developed six months of constant exhaustion after glandular fever in 2023. He kept working full time for a homeless charity by masking and using caffeine and nicotine, while considering resigning. He had long-standing depression and anxiety and mild sleep apnea, and doctors offered only graded exercise. By October 2023 he had not improved and was having suicidal thoughts.
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What they tried
Also tried
Their words about each treatment
- caffeine · Helped
I only manage this intense job through lots of masking and caffeine + nicotine
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2023 (earlier this year) | caught glandular fever, followed by six months of exhaustionAfter catching glandular fever earlier this year, I've faced 6 months of pure exhaustionIn context ↗ | Not stated |
| 2023-10-09 | six months of constant exhaustion while still working full timeI still work full time for a homeless charity, but I only manage this intense job through lots of masking and caffeine + nicotine.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I've always struggled with excessive day time tiredness and have mild sleep apnea
In context ↗ - Anxiety & low mood
I've struggled with depression and anxiety for many years
In context ↗