Bedridden on and off with long COVID, now much better after vision and vestibular therapy
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
I have had Long Covid for over 3 ½ years now.
In context ↗ - At worst: Severe
I was bedridden on and off all of 2022 through April 2023.
In context ↗ - Now: Much better
I am much more functional and I am able to get my college degree online,doing normal fun college activities with my friends, and working out/going for walks even though I vomit multiple days a week from head pain and have daily chronic pain in the front of my head that is a work in progress
In context ↗ - Began after: COVID
back in January 2022 until I got covid
In context ↗
Read from 36 of their posts and comments; links to the 4 this page draws on
Summary
A 21-year-old woman became ill with long COVID in January 2022 and was bedridden on and off until April 2023, with daily front-of-head pain, frequent vomiting and histamine intolerance. Vision and vestibular therapy, Botox, RFA nerve ablations and antihistamines left her much more functional; by September 2025 she was doing her degree online, seeing friends and walking, though head pain and vomiting several days a week continued.
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What they tried
What they credit
Also tried
Their words about each treatment
- RFA nerve ablations · Helped a lot
the nerve ablations take away all of the pain on the outside of my head
In context ↗ - Migraine Botox · Helped
Migraine Botox from my neurologist that gets injected all over my head and down my neck.
In context ↗ - Gabapentin · Not said
I take Gabapentin and Amantadine as preventative medications for my head pain.
In context ↗ - Allegra, hydroxyzine and Benadryl · Helped
Also Benadryl, hydroxyzine, Allegra, and Famatodine are antihistamines that help relieve the vice grip and squeezing feeling
In context ↗ - ketamine infusions · Helped
I get ketamine infusions at the hospital to help with my head pain.
In context ↗ - Low histamine and low sulfur diet · Not said
Low histamine and low sulfur diet.
In context ↗ - Acupuncture · Helped
Acupuncture and nerve blockers help but now I just get all my nerves deadened every 6 months.
In context ↗ - intense vision and vestibular therapy · Helped a lot
which have allowed me to go from vomiting just looking at a computer screen ... Now I have increased my stamina to 8-10 hours a day
In context ↗ - sodium cromolyn · Not said
Trying sodium cromolyn, Allegra, fomatidine, DAO, and possibly Ketotifen
In context ↗ - vagus nerve stimulator · Helped
Yes I have a brain injury from Covid and extreme GI issues it helps with both
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 15 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2022 | COVID-19 infection while a healthy college gymnastback in January 2022 until I got covidIn context ↗ | Not stated |
| 2022 through April 2023 | bedridden on and offI was bedridden on and off all of 2022 through April 2023.In context ↗ | Severe |
| 2025 | much more functional, online degree, out with friends and walking, still daily head pain and vomitingI am much more functional and I am able to get my college degree onlineIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
daily chronic pain in the front of my head that is a work in progress
In context ↗ - Gut problems
I vomit multiple days a week from head pain
In context ↗ - Vision problems
causes pain in my brain, along with vision issues
In context ↗ - Mast cell (MCAS) & allergies
histamine intolerance and triggers for my head pain and stomach
In context ↗
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