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ME/CFS Mild → somewhat betterNeeds ongoing treatment

ME/CFS with pain and anxiety, somewhat better on pregabalin and bupropion

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
Not stated
Last post
Dec 2023
In their words
  • Condition: ME/CFSSo ME/CFS is not a recognized illness on its own in my country In context ↗
  • At worst: MildI am what the doctors describe as a "mild case" of fibro In context ↗
  • Now: Somewhat betterEver since I take it I have a lot more energy, especially in the mornings. I even sleep a bit better. In context ↗
Read from 7 of their posts and comments; links to the 4 this page draws on

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Summary

They were diagnosed with fibromyalgia after seeing a rheumatologist, and Pregabalin, started in 2021, made them feel better and eased anxiety but did not help the pain; a higher dose added nothing. Bupropion in early 2022 gave noticeably more energy and slightly better sleep. In late 2023, exercising left them feeling unwell for two days afterwards.

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What they tried

What they credit

Their words about each treatment
  • Pregabalin · HelpedEver since I've started taking Pregabalin I have been feeling better. ... seems to help with anxiety
  • Bupropion · HelpedBupropion! Ever since I take it I have a lot more energy, especially in the mornings. I even sleep a bit better. In context ↗
  • duloxetine · Not saidtake propranolol and duloxetine In context ↗
  • magnesium · Not saidI also supply magnesium and D3 vitamin In context ↗

Approaches: Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecovered8.5 y9 y9.5 y10 y10.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8.3 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
November 2021felt better after starting pregabalinEver since I've started taking Pregabalin I have been feeling better. In context ↗Mild
2022-02-22more energy and slightly better sleep on bupropionBupropion! Ever since I take it I have a lot more energy, especially in the mornings. I even sleep a bit better. In context ↗Mild
2023-12-01able to exercise but crashes for two days afterwardsIf I exercise, I feel like shit for 2 days after that. If I don't, I feel like my body shrinks and can't reach a cupboard, so unstretched and aching :/ In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseIf I exercise, I feel like shit for 2 days after that. In context ↗
  • Anxiety & low moodseems to help with anxiety In context ↗

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