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Long COVID Moderate → no benefit

Housebound by long COVID PEM, no improvement after low-dose naltrexone or vaccine

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Dec 2024
In their words
  • Condition: Long COVIDI have post exertional malaise which has caused me to be pretty much housebound. In context ↗
  • At worst: ModerateI have post exertional malaise which has caused me to be pretty much housebound. In context ↗
  • Now: No benefitI am wiped out from it? In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Housebound by post-exertional malaise and never sure how much they could do without crashing for days, they had just started low-dose naltrexone in September 2024, alongside depression meds, and had stomach issues over the first three days. In December 2024 they reported being wiped out after a vaccine their doctor had suggested might help, and asked others how they had felt. No improvement was described.

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What they tried

Their words about each treatment
  • naxolone low dose · WorseI have just been on naxolone for 3 days and have had stomach issues the past 3 days In context ↗
  • depression meds · Not saidI am now on naxolone low dose and depression meds. In context ↗
  • vaccine · WorseMy Dr told me vaccine might make me feel better. I am wiped out from it? In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2024-09-11housebound by post-exertional malaise, crashing for daysI have post exertional malaise which has caused me to be pretty much housebound. I never know how much I can do without crashing for days. In context ↗Moderate
2024-12-01wiped out after a vaccine their doctor suggestedMy Dr told me vaccine might make me feel better. I am wiped out from it? In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI have post exertional malaise which has caused me to be pretty much housebound. In context ↗
  • Gut problemshave had stomach issues the past 3 days In context ↗
  • Temperature regulationI think the heat made it worse as this summer was brutal. In context ↗

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