ME/CFS
No benefit
ME/CFS symptoms and suicidal after a medication, no improvement, still waiting for clinic
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Now: No benefit
they first thought it was because my vitamin D was low but I was still sick after treatment
In context ↗
Summary
A UK user spent almost a year fighting for a diagnosis before a GP finally diagnosed CFS; they had already started pacing to manage their symptoms. A medication they tried made their depression much worse and left them feeling suicidal. In one post they were still waiting to hear from the ME/CFS clinic.
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What they tried
Their words about each treatment
- vitamin D treatment · No change
they first thought it was because my vitamin D was low but I was still sick after treatment
In context ↗ - pacing · Helped
I’d already started pacing because it was the best way I found to try and manage my symptoms
In context ↗ - amitriptyline · Much worse
I tried it, it made my depression much worse and I felt suicidal
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2026-05-01 | started pacing to manage symptomsI’d already started pacing because it was the best way I found to try and manage my symptoms.In context ↗ | Mild | Pacing and the energy envelope |
| 2026-09-29 | amitriptyline made depression much worse and they felt suicidalI tried it, it made my depression much worse and I felt suicidalIn context ↗ | Mild |
Adverse events
- Amitriptyline (Elavil)“I tried it, it made my depression much worse and I felt suicidal” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“I tried it, it made my depression much worse and I felt suicidal” In context ↗ Suicidal thoughts or attempt
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my symptoms were consistent and the PEM was consistent
In context ↗ - Anxiety & low mood
it made my depression much worse and I felt suicidal
In context ↗