ME/CFS
Severe → no benefit
Bedbound with ME/CFS for months, tried gentle manual traction
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jan 2020
In their words
- Condition: ME/CFS
I've been EVEN MORE fatigued than usual
In context ↗ - At worst: Severe
Before I got mine I didn't leave the house for many years
In context ↗ - Now: No benefit
being bed bound for close to six months and it ruining my life and sanity
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Eagle 86986, in the UK, had ME/CFS; before getting a walking stick at 21 she had not left the house for years, and the stick gave her a little freedom. By early 2020 she had been bedbound for close to six months, and in December 2019 she reported being even more fatigued for weeks, sleeping at least 12 hours a day. Gentle manual traction from her partner gave immediate relief, and she was saving for a traction device while waiting for a rheumatologist referral.
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What they tried
Also tried
gentle manual traction· Helped a lotwalking stick· Helpedspa trip (roof pool and massage)· Helpedflu shot· Worse
Their words about each treatment
- walking stick · Helped
Before I got mine I didn't leave the house for many years... it literally helped give me a little freedom.
In context ↗ - flu shot · Worse
I'm in the UK and from the day after till now... (weeks later) I've been EVEN MORE fatigued than usual, I've slept at least 12 hours a day.
In context ↗ - spa trip (roof pool and massage) · Helped
the walk from the train crippled me but once we were floating on the roof pool, looking at the incredible view of the old buildings it floated away.
In context ↗ - gentle manual traction · Helped a lot
My partner tried gentle manual traction on me and I immediately felt so much better, even down to things looking more real if that makes sense?
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | Housebound for years before getting a walking stickBefore I got mine I didn't leave the house for many yearsIn context ↗ | Severe |
| 2007 | Got a walking stick, which gave them a little freedomI've been using a walking stick for 12 years now (since age 21) ... it literally helped give me a little freedom.In context ↗ | Moderate |
| 2019 | Bedbound for close to six monthsbeing bed bound for close to six months and it ruining my life and sanityIn context ↗ | Severe |
| 2019-12 | Flu shot left them even more fatiguedfrom the day after till now... (weeks later) I've been EVEN MORE fatigued than usual, I've slept at least 12 hours a day.In context ↗ | Severe |
| 2020-01-23 | Partner's gentle manual traction gave immediate relief; still waiting for a traction deviceMy partner tried gentle manual traction on me and I immediately felt so much betterIn context ↗ | Severe |
Adverse events
- Flu vaccine“from the day after till now... (weeks later) I've been EVEN MORE fatigued than usual, I've slept at least 12 hours a day.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I've slept at least 12 hours a day
In context ↗ - Post-exertional malaise
the walk from the train crippled me
In context ↗