ME/CFS
Outcome unclear
ME/CFS: okay resting at home, but preemptive withdrawal to avoid symptoms is excruciating
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
when I’m sitting at home resting and preventing symptoms, I feel okay
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Breeze 12769 describes the difficulty of having to decide in advance to withdraw from activities in order to avoid symptoms. They say they feel okay when sitting at home resting and preventing symptoms, but that they must protect themselves preemptively, which they find excruciating, since they second-guess whether they would have been fine had they gone ahead.