ME/CFS
Outcome unclear
ME/CFS fatigue, every waking moment longing for bed; caffeine alertness, no lasting change
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- May 2025
In their words
- Condition: ME/CFS
Chronic fatigue is being awake, and wanting to sleep.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Writing in r/cfs in May 2025, the user described chronic fatigue in which every waking moment was spent looking forward to bed. No onset date, severity or background was given. Drinking caffeinated drinks from morning to evening, tried as an experiment, removed the urge to sleep and left them feeling awake and wanting to do things, which they likened to how non-CFS people feel. They did not report any lasting change.
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What they tried
Also tried
Their words about each treatment
- caffeine · Helped
Interestingly, whenever I drink caffeine containing beverages from morning till evening, this effect vanished. I'm no longer looking forward to going to bed at every single moment of being awake.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | chronic fatigue: every waking moment spent wanting to sleepEvery single moment of the day I am awake I am looking forward to going to bed at the end of the day.In context ↗ |
| 2025-05-06 | caffeine from morning till evening made them feel awake and want to do thingswhenever I drink caffeine containing beverages from morning till evening, this effect vanished. I'm no longer looking forward to going to bed at every single moment of being awake.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Every single moment of the day I am awake I am looking forward to going to bed at the end of the day.
In context ↗