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Long COVID RelapsedIll 23 months before improving or writing

Long COVID fatigue and heart-rate problems, improved then relapsed after a third infection

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
23 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDi had it back in 2020 when i got covid for the first time and had LC In context ↗
  • Now: RelapsedBut i’m just getting over having covid for 3rd time and it’s now coming back In context ↗
  • Began after: COVIDsince i had covid back in December In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A person developed long COVID in December 2020, with chest and jaw pain, fatigue and heart-rate problems. Over about nine months their symptoms slowly got better, and a second COVID infection a few months later did not bring them back. They caught COVID a third time in late 2022 and their symptoms returned, leaving them worried they would again be as bad as before.

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Asking aboutDune 81029’s story

What they tried

Their words about each treatment
  • jaw massages · Worsei've been doing jaw massages but i think it might be making it worse In context ↗
  • tylenol · No changetylenol and ibuprofen don’t help the pain at all In context ↗
  • vaccine · Not saidi’m hoping the vaccine won’t make them worse. So far just having a little chest pain and tiredness, i got it about 5 hours ago In context ↗
  • time · Helpedafter like 9 months it slowly got better and then a few months after it was better i got covid again In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2020COVID-19; long COVID begansince i had covid back in December In context ↗Mild
around 9 months into long COVIDsymptoms slowly got betterafter like 9 months it slowly got better In context ↗Near normal
2022-11-06third COVID infection; dysautonomia symptoms returningi’m just getting over having covid for 3rd time and it’s now coming back In context ↗Not stated
2022-11-06just over a third COVID infection, worried symptoms will be bad againi’m nervous it will be bad again In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsi’ve been dealing with some heart rate issues too for the last 5 months In context ↗
  • POTS & dysautonomiait’s now coming back and i’m nervous it will be bad again In context ↗
  • Anxiety & low moodbefore i even contracted covid due to my anxiety In context ↗

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Asking aboutDune 81029’s story

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