ME/CFS
Severe → no benefitIll for 14 months
ME/CFS with post-exertional crashes, now resting in bed and no better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 14 months
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I’ve had this since 17 after mono infection.
In context ↗ - At worst: Severe
I just waste away in bed
In context ↗ - Now: No benefit
over time I kept getting it and I constantly pushed and pushed thinking it would just go away. But obviously it got worse
In context ↗ - Began after: glandular fever or EBV
I’ve had this since 17 after mono infection.
In context ↗
Summary
A 19-year-old man ill since 17 after glandular fever, with post-exertional malaise after exertion. He kept at full-time manual work until half a day caused a crash, then stopped; ramping activity up later lowered his tolerance again. Finasteride left him with post-finasteride syndrome. By his latest post he was resting in bed, drinking daily and thinking of ending his life, with no treatment credited or improvement.
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What they tried
Their words about each treatment
- pushing through and ramping up exercise · Worse
I constantly pushed and pushed thinking it would just go away. But obviously it got worse
In context ↗ - finasteride · Worse
Also took finasteride which resulted in PFS so it’s just added everything on top of what I had already
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 17 | glandular fever (mono), then PEM started while working full-time manual labourI had glandular fever a year ago ... i started getting this PEM thing I keep seeing onlineIn context ↗ | Mild |
| late 2025 | kept pushing at work until half a day caused a crash; stopped workingit got worse then I was at a point where half a day of work did it for me, so I stopped and I’ve been testing for around 8 monthsIn context ↗ | Moderate |
| July 2026 | tolerance fell again after ramping activity up; could socialise but not do physical workthese past few months which I’ve started ramping it up abit my tolerence has gone back downIn context ↗ | Moderate |
| September 2026 | resting in bed all day, grieving his old life, drinking daily and suicidalCan’t really do anything meaningful without a crash ... I just waste away in bedIn context ↗ | Severe |
Adverse events
- Everyday exercise and activity“these past few months which I’ve started ramping it up abit my tolerence has gone back down” In context ↗ Made symptoms worse
- Finasteride (Propecia)“Also took finasteride which resulted in PFS so it’s just added everything on top of what I had already.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Can’t really do anything meaningful without a crash.
In context ↗ - Anxiety & low mood
All I think about everyday is to end my life
In context ↗