List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Published
- Undated
Summary
Renee is listed reaching a near-normal life on combined valaciclovir/valganciclovir, though the case notes she still cannot exercise vigorously - a near-full but not complete recovery.
What they credit
Credits Antivirals, Valcyte / valganciclovir, Valtrex / valacyclovir.
Similar stories
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Health Update #4: Recovery is a %*#*&$@!
Jennifer Brea had been managing severe ME for about 8 years with Valcyte, Valtrex, Mestinon, and fludrocortisone plus mold avoidance, which had only brought her from severe to moderate; in November 2018 she underwent three surgeries over six weeks — a…
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Antiretrovirals to treat MECFS
Truvada (emtricitabine/tenofovir), taken for about three months before adding Valtrex and Valcyte on an ongoing basis. Illness duration and severity beforehand are not stated, though functioning was self-rated at 5 out of 10. Improved to 7 out of 10 on…
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Good results from valtrex and valcyte combo
Added Valtrex 1g/day, then Valcyte 450mg twice daily a month later, on top of about a year already on Truvada, for CFS present "5 to 6 years" but only diagnosed 3-4 months earlier; self-rated baseline severity "5 or 6 out of 10," never bedridden but with…
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Renee Can't Exercise But Otherwise Has A Normal Life
Tried Valtrex and separately Valcyte for ME/CFS. Says Valtrex made her ill and Valcyte had no effect, and emphasizes how much the disease varies between patients. No illness duration or severity detail is given, and no benefit from either antiviral is…