Housebound and partly bedbound with ME/CFS, now mild-moderate after pacing
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
assume that I have ME/CFS and try pacing
In context ↗ - At worst: Moderate
I went from pretty solidly moderate to mild (when I'm not in a crash)
In context ↗ - Now: Much better
I went from pretty solidly moderate to mild (when I'm not in a crash), and my crashes now are a lot easier to manage
In context ↗
Summary
Island 24504, 21 and non-binary, was housebound apart from college classes and partly bedbound, at a moderate level. Pacing helped a lot over about a year, and they improved to mild-moderate, able to shop with someone, take short walks, cook simple meals and go to a bar without a big next-day crash. They still had crashes and were awaiting an official diagnosis.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped a lot
Luckily for me, pacing helps a ton! ... I was able to go from housebound (minus attending college classes) and partially bedbound to being able to go grocery shopping with someone!!
In context ↗ - compression materials and electrolytes · Not said
I'm planning on needing lots of lay down time and compression materials for blood pooling in my legs. ... I'm also bringing more electrolytes than I usually go through.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | housebound apart from college classes and partly bedboundI was able to go from housebound (minus attending college classes) and partially bedboundIn context ↗ | Moderate | |
| over about a year | pacing helped; moved from moderate to mild-moderatepacing helps a ton! ... I went from pretty solidly moderate to mildIn context ↗ | Mild | Pacing and the energy envelope |
| 2026-06-02 | still mild when not crashing; crashes easier to managemy crashes now are a lot easier to manage and maintain than it was last yearIn context ↗ | Mild | Pacing and the energy envelope |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my crashes now are a lot easier to manage and maintain than it was last year
In context ↗ - POTS & dysautonomia
compression materials for blood pooling in my legs
In context ↗
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