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Long COVID Outcome unclearIll for 2.5 years

Long COVID with 2.5 years of headaches and convulsion-like episodes; epilepsy dismissed

Condition
Long COVID
At worst
Not stated
Ill for
2.5 years
Last post
Jan 2024
In their words
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Reports 2.5 years of constant headaches with a lot of neck tension, plus recurring convulsion-like episodes with muscle cramping, hands and feet in strange positions and strange noises, during which they stay conscious. A first EEG showed mild epileptic signs, but a five-day EEG showed only isolated slowing and epilepsy was dismissed. The latest episode came in January 2024, after almost a year free of them.

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Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsetonset of constant headaches with neck tensionMy main symptom otherwise is constant headaches for 2.5 years and a lot of tension in my neck. In context ↗
2024-01-21another seizure episode after almost a year seizure-freeYesterday I had another seizure, the first after a long break (almost one year "seizure"-free). In context ↗

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineMy main symptom otherwise is constant headaches for 2.5 years and a lot of tension in my neck. In context ↗

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