ME/CFS
Mild → no benefitIll for 4 yearsNeeds ongoing treatment
ME/CFS, rarely leaving home to socialise, caffeine brought no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 4 years
- Last post
- Jan 2024
In their words
- Condition: ME/CFS
I don’t have any negative effects from having coffee unlike a lot of people with cfs/me x
In context ↗ - At worst: Mild
I generally have 1 cup in the morning and if I’m leaving the house to socialise it usually involves coffee, but that is very rare.
In context ↗ - Now: No benefit
Yes caffeine keeps me human. I don’t drink it everyday but need it to get me through the week lol.
In context ↗
Summary
A person with ME/CFS said caffeine kept them human: about one cup in the morning, not every day, helped them get through the week with no negative effects, and leaving the house to socialise was very rare. A support group they attended about four years after onset was depressing; they preferred friends from a local ME/CFS Facebook group.
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What they tried
Also tried
Their words about each treatment
- caffeine · Helped
I generally have 1 cup in the morning and if I’m leaving the house to socialise it usually involves coffee
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~2020 | ME/CFS onsetabout 4 years after onsetIn context ↗ | Mild |
| 2024-01-14 | still ill; found a support group depressingI went to a support group at a similar time to you, about 4 years after onsetIn context ↗ | Mild |