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ME/CFS Outcome unclear

ME/CFS diagnosis in doubt, waiting on sleep clinic, holding off CFS CBT

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jan 2026
In their words
  • Condition: ME/CFSbefore we just flat out focus on CFS when I am having my own doubts about the diagnosis In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

They described a CFS diagnosis and doubts about it, and wanted a sleep-clinic referral to rule out hypersomnia before focusing on CFS. They had CBT many years ago for a mental health reason and ERP last year for OCD, and found ERP immensely helpful. They decided not to start CBT for CFS for now, preferring to wait for the sleep clinic and not wanting to take a psychiatrist's time or a scarce resource from someone else.

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What they tried

Their words about each treatment
  • CBT · Not saidI have had CBT many years ago for a mental health reason In context ↗
  • ERP · Helped a lotalso had ERP last year for my OCD and found it immensely helpful In context ↗

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