ME/CFS
Mild → relapsed
ME/CFS relapsed after 11 years symptom-free, now bedbound by over an hour of activity
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
I was recently rediagnosed with CFS
In context ↗ - At worst: Mild
I've already gone down from four to three days a week, but at the moment, doing anything for longer than an hour has me bedbound for the rest of the day and with significantly worse symptoms for days afterwards.
In context ↗ - Now: Relapsed
recently rediagnosed with CFS after 11 years without any symptoms
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They had CFS, went 11 years without symptoms, and were recently rediagnosed after that remission. Working three days a week rather than four, they said any activity lasting over an hour left them bedbound for the rest of the day, with significantly worse symptoms for days afterwards. They asked for advice on pacing before starting a social work placement.
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What they tried
Their words about each treatment
- gone down from four to three days a week · Not said
I've already gone down from four to three days a week
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | first had CFS, later went into a long symptom-free stretchI was recently rediagnosed with CFS after 11 years without any symptomsIn context ↗ | Not stated |
| 11 years before the rediagnosis | 11 years without any symptoms11 years without any symptomsIn context ↗ | Recovered |
| 2026-01-29 | CFS returned; cut work from four to three days a week and bedbound after an hour of activityI've already gone down from four to three days a week, but at the moment, doing anything for longer than an hour has me bedbound for the rest of the dayIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
doing anything for longer than an hour has me bedbound for the rest of the day and with significantly worse symptoms for days afterwards
In context ↗