ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS flares every day, still on daily gabapentin and unable to taper off
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
I got prescribed gabapentin for flareups and anxiety ... you have to be careful with pacing
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS was prescribed gabapentin for flareups and anxiety. It worked fairly well, but their condition worsened until they took it daily because every day was a flareup. They wanted to use it only for flares, yet found withdrawal brutal, with anger, anxiety, panic and insomnia, and said it masked signals that they were overdoing activity. They remained on daily gabapentin and had not managed to taper off.
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What they tried
Also tried
Their words about each treatment
- gabapentin · Helped
I got prescribed gabapentin for flareups and anxiety, it works pretty well but my situation got so bad I had to start taking it daily
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | daily flareupsevery day was a flareupIn context ↗ |
| 2025-10-09 | daily gabapentin works pretty well; wants to taper but withdrawal is brutalit works pretty wellIn context ↗ |
Adverse events
- Gabapentin (Neurontin)“the withdrawal is brutal--intense anger, anxiety, panic, insomnia” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
every day was a flareup
In context ↗ - Anxiety & low mood
prescribed gabapentin for flareups and anxiety
In context ↗ - Sleep problems
withdrawal is brutal--intense anger, anxiety, panic, insomnia
In context ↗