ME/CFS with headaches, pain and weakness, now somewhat better after eating better
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- May 2022
In their words
- Condition: ME/CFS
since having cfs I’ve developed an intolerance to some medications
In context ↗ - Now: Somewhat better
Yes I’ve recently seen improvement by eating better ... I’ve noticed I have more energy and I’ve been sleeping throughout the night ... For me this has made a massive difference.
In context ↗ - Began after: another virus
I got ill with gastroenteritis which is what caused my CFS
In context ↗
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
Cove 54224, a UK Reddit user with ME/CFS, dated the illness to gastroenteritis. Their first AstraZeneca dose worsened symptoms with side effects for about a week; the second worsened symptoms but side effects lasted about three days; a booster caused over a week of sleeping most of the day, headaches, pain and weakness before they returned to normal. In May 2022 they reported a big improvement from eating better, with more energy and sleeping through the night.
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What they tried
What they credit
Also tried
Their words about each treatment
- mirtazapine · Helped a lot
It actually worked really well for me, it made me able to continue working part time ... the weight gain was ridiculous.
In context ↗ - lyrica · Helped
I have tried lyrica for pain before I became ill with ME but it only helped slightly for pain.
In context ↗ - AstraZeneca COVID vaccine and booster · Worse
1st does I felt horrendous it worsened my cfs symptoms too and felt the side effects for about a week
In context ↗ - Tramadol · Not said
So I’ve been prescribed Tramadol 50mg by my GP for pain ... I’ve taken it before and have been absolutely fine
In context ↗ - paracetamol · No change
I’ve tried paracetamol, ibuprofen, naproxen, my current codine isn’t helping, essential oils, ice packs, head and temple massages and nothing works.
In context ↗ - codeine · No change
my current codine isn’t helping
In context ↗ - promethazine · Helped
I was given a months worth of promethazine recently but was advised not to take it every night as it will lose its affect. It has helped, I have less sleepless nights
In context ↗ - eating better, no junk food, no snacking · Helped a lot
Yes I’ve recently seen improvement by eating better, no junk food at all, no snacking in the evenings. ... For me this has made a massive difference.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | became ill with CFS after gastroenteritisI got ill with gastroenteritis which is what caused my CFSIn context ↗ | Not stated |
| 2021-08-05 | AstraZeneca COVID vaccinations worsened symptomsI felt horrendous it worsened my cfs symptoms too and felt the side effects for about a weekIn context ↗ | Severe |
| 2022-01-23 | crashed after COVID boosterI had my booster last Friday and for over a week I was sleeping most of the day, zero energy to do really anything at allIn context ↗ | Severe |
| 2022-05-01 | improvement after cleaning up dietI’ve recently seen improvement by eating better, no junk food at all ... I’ve noticed I have more energy and I’ve been sleeping throughout the nightIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“it worsened my cfs symptoms too” In context ↗ Made symptoms worse
- COVID vaccination as treatment“felt the side effects for about a week” In context ↗ Side effects
- COVID vaccination as treatment“the 2nd jab also worsened my symptoms but the side effects only lasted for about 3 day max.” In context ↗ Made symptoms worse
- Pregabalin (Lyrica)“I found the lyrica actually made me more wired than tired” In context ↗ Side effects
- Mirtazapine (Remeron)“within a two year period of taking it I had doubled in weight ... the weight gain was ridiculous.” Side effects
- COVID vaccination as treatment“for over a week I was sleeping most of the day, zero energy to do really anything at all, awful headaches, pain and body weakness.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
Does anyone else get awful, debilitating headaches? I feel like someone is squeezing my head
In context ↗ - Post-exertional malaise
I really overdone myself yesterday and the pain and fatigue is intense today
In context ↗ - Muscle weakness
awful headaches, pain and body weakness
In context ↗ - Anxiety & low mood
I’m extremely anxious to take it
In context ↗
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