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ME/CFS Mild → no benefit

Suspected ME/CFS and POTS while working minimally, beta blockers gave no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Feb 2025
In their words
  • Condition: ME/CFSI have suspected CFS but I have been diagnosed with POTS for two years from a tilt table test. In context ↗
  • At worst: MildCaffeine, ADHD meds, and doing the smallest amount of work possible to keep my job. In context ↗
  • Now: No benefitI haven't had luck with any beta blockers to treat my POTS, just at home management with compression socks, increased hydration, and salt supplements. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with suspected ME/CFS and with POTS diagnosed two years earlier by tilt table test, doing the smallest amount of work possible to keep their job, leaning on caffeine and ADHD medication with a breakdown every few weeks. Beta blockers did not help the POTS; they managed at home with compression socks, increased hydration and salt supplements. No improvement was described.

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What they tried

Their words about each treatment
  • Caffeine · Not saidCaffeine, ADHD meds, and doing the smallest amount of work possible to keep my job. In context ↗
  • Doing the smallest amount of work possible to keep my job · Not saiddoing the smallest amount of work possible to keep my job In context ↗
  • beta blockers · No changeI haven't had luck with any beta blockers to treat my POTS In context ↗
  • compression socks, increased hydration, and salt supplements · Not saidjust at home management with compression socks, increased hydration, and salt supplements. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—suspected ME/CFS with extreme fatigue, onset not describedI have suspected CFS In context ↗Not stated
2023POTS diagnosed by tilt table testI have been diagnosed with POTS for two years from a tilt table test In context ↗Not stated
2025-02-14still working the minimum needed to keep the job, with a breakdown every few weeksdoing the smallest amount of work possible to keep my job. Plus the standard breakdown every few weeks In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI have been diagnosed with POTS for two years from a tilt table test In context ↗

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