ME/CFS
No benefit
Mild ME/CFS for a long time; running within limits led to deterioration, no benefit
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
I was mild for a long time
In context ↗ - Now: No benefit
in the long run it caused me to deteriorate
In context ↗
Summary
Kite 46913 described being mild for a long time with ME/CFS. They said they ran one to two times a week within their energy envelope without causing PEM, but that over the long run it caused them to deteriorate. They advised another patient with daily jogging to seek more investigation and to be careful. They also said biking worked better than walking because it took less energy.
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What they tried
Their words about each treatment
- ran 1-2 times a week · Worse
I was mild for a long time and ran 1-2 times a week and kept exercising within my envelope without causing PEM, but in the long run it caused me to deteriorate.
In context ↗ - biking · Helped
for me biking works better than walking. Takes less energy and still kinda feeeels like exercise even when you bike slow
In context ↗ - exercising within my envelope · Helped
kept exercising within my envelope without causing PEM
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | Mild ME/CFS for a long timeI was mild for a long timeIn context ↗ | Mild |
| — | Deteriorated after long-term running within energy envelopein the long run it caused me to deteriorateIn context ↗ | Not stated |
| 2026-02-18 | Still ill after deterioration; advised caution with daily joggingI was mild for a long time and ran 1-2 times a week and kept exercising within my envelope without causing PEM, but in the long run it caused me to deteriorateIn context ↗ | Not stated |