ME/CFS
Outcome unclear
ME/CFS: pacing and resting after activity never helps; adjusting to a new normal
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Nov 2025
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Trail 99110 and their wife have started pacing, keeping anything out of the ordinary from being excessive and resting for long afterward, though it never helps. Their wife is very understanding and can often tell by looking at them, and they are adjusting to a new normal. They say doctors can be dismissive even though only patients can feel what happens in their bodies.
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What they tried
Their words about each treatment
- resting and keeping activity not excessive · No change
We ensure that anything out of the ordinary is not excessive and that I rest for a long period afterward- although it never helps.
In context ↗