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ME/CFS No benefit

ME/CFS with POTS: no ME/CFS improvement after a non-beta-blocker and goal setting

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Aug 2026
In their words
  • Condition: ME/CFSME causes dysfunction in so many systems In context ↗
  • Now: No benefiteverything is bad, try fix everything, stuff keeps getting worse In context ↗
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

A person with long COVID and ME/CFS said an unnamed non-beta-blocker medication helped their POTS a lot and did not cause fatigue. About five years later they wrote that ME causes dysfunction in many systems and that things kept getting worse when they tried to fix everything, but that setting specific goals, such as drinking enough water for POTS, had helped them a lot.

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What they tried

Also tried

drink enough water· Helpedhaving specific goals· Helped
Their words about each treatment
  • drink enough water · Helpedmake my main focus drink enough water to help with POTS for a bit. In context ↗
  • having specific goals · Helpedhaving specific goals has helped me a lot In context ↗

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Asking aboutStream 99131’s story

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