ME/CFS, disabling IBS from MCAS, somewhat better on low-histamine foods and antihistamines
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- At worst: Moderate
My MCAS caused disabling IBS for over a year ... For a year when I was at my worst I lived on these
- Now: Somewhat better
I think treating the constant excessive histamine in my body has allowed my body to heal and is now more resilient to cold sores.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Lynx 24287 said that for a year at their worst they lived on meal replacement powders and oats, and that MCAS caused disabling IBS for over a year. They credited low-histamine foods and frequent antihistamines with large improvement, and said treating their MCAS made cold sores after stress or overdoing it much less frequent. They still described limited energy, resting outdoors when they could.
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What they tried
Also tried
Their words about each treatment
- low histamine foods · Helped a lot
Eating low histamine foods has helped tremendously.
In context ↗ - antihistamines · Helped a lot
Eating antihistamines like candy also has been life changing
In context ↗ - Vybey meal replacement powders · Helped
They helped me stay healthy with the least amount of effort.
In context ↗ - resting outdoors / sleeping in a hammock · Helped
sleeping in that has a better effect than indoors
In context ↗
Approaches: H1 antihistamines · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | at their worst for a year, lived on meal replacement powders and oats as they had the least energyFor a year when I was at my worst I lived on theseIn context ↗ | Moderate | |
| 2026-02-16 | low-histamine diet and frequent antihistamines helped their MCAS and disabling IBSMy MCAS caused disabling IBS for over a year. Eating low histamine foods has helped tremendously.In context ↗ | Mild | Low-histamine diet |
| 2026-03-28 | still energy-limited, resting outdoors in a hammock when energy permitsI find resting outdoors when the weather and my energy permits to be a lot more restorative then indoors.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
My MCAS caused disabling IBS for over a year.
In context ↗
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