Miruvor
Sign up
ME/CFS Relapsed

ME/CFS improved with low-dose naltrexone for two to three weeks, then relapsed

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Dec 2024
In their words
  • Now: RelapsedSince it’s just works for 2-3 weeks for me it’s helpfulness is limited. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

Starling 71241, posting in an ME/CFS forum, reported taking low-dose naltrexone, with best benefit at 1 mg: productivity five times higher and more mental and physical energy while it worked. The benefit faded within about two weeks and they returned to normal, so its helpfulness lasted only two or three weeks. They had an appointment with a Stanford specialist to ask about other options.

Ask Miruvor AI

Asking aboutStarling 71241’s story

What they tried

Their words about each treatment
  • LDN · Helpedmy productivity was 5x when on LDN ... Since it’s just works for 2-3 weeks for me it’s helpfulness is limited. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—started low-dose naltrexone; productivity and energy rosemy productivity was 5x when on LDN In context ↗Low-dose naltrexone
2024-12-23LDN benefit faded within about two weeksthis decreases quickly with in 2 weeks and back to normal In context ↗

Ask Miruvor AI

Asking aboutStarling 71241’s story

Similar stories

  • Mostly housebound with ME/CFS, now a little better on Klonopin and low-dose naltrexone

    Somewhat better Valley 89571 ME/CFS Moderate at worstIll 3 years before improving or writing reddit.com Oct 2026

    Joseph, 47, in Los Angeles, developed ME/CFS in January 2024, about 18 days after a second COVID infection. He declined from mild to the bad end of moderate over six months, becoming mostly housebound. Klonopin, low-dose naltrexone, midodrine and propranolol…

  • Long COVID brain fog, somewhat better with nicotine patch and naltrexone

    Somewhat better Pebble 25278 Long COVID Mild at worst reddit.com Oct 2026

    Pebble 25278 developed long COVID with brain fog, distorted smell, headaches, nerve pain and trouble sleeping. A quarter of a 10 mg nicotine patch restored much of their speech and thinking, and low-dose naltrexone further raised their cognitive and physical…

  • Almost bedridden with ME/CFS, now much better after a specialist regimen and pacing

    Much better Fox 20038 ME/CFS Severe at worstIll 6.5 years before improving or writing reddit.com Oct 2026

    A California woman infected with COVID in March 2020 was sick six months, partly recovered, then relapsed and was almost bedridden by early 2023, unable to drive and sensitive to light and noise. An out-of-pocket ME/CFS specialist regimen of LDN, Abilify,…

  • Bedbound with ME/CFS, now housebound and somewhat better with rest and low-dose naltrexone

    Somewhat better Maple 86872 ME/CFS Severe at worstIll 18 months before improving or writing reddit.com Oct 2026

    After about 1.5 years of ME/CFS with push–crash cycles, they became bedbound for two months in mid-2026, getting up only for the bathroom. They improved slowly with four months of rest, low-dose naltrexone, a beta-blocker, compression and salt/fluids. By…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime