Ill with a virus, likely ME/CFS, much better with electrolytes and compression
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- May 2026
In their words
- Condition: ME/CFS
finally got diagnosed with POTS 4 months ago and likely CFS
In context ↗ - At worst: Mild
pacing with work is definitely the hardest ... I have to take breaks during my workday
In context ↗ - Now: Much better
since the diagnosis doing much better ... I have to take breaks during my workday
In context ↗ - Began after: another virus
Almost a year and a half ago got sick with a virus and haven’t been the same.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A formerly very active person who ran half marathons fell ill with a virus about 18 months before posting and was diagnosed with POTS and likely CFS four months before. Since the diagnosis they improved with electrolytes and compression, were on beta blockers and supplements, and used a Visible band to help with pacing; pacing with work was hardest. They still worked with breaks, sometimes crashed after workdays, had occasional PEM and had begun short jogging intervals.
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What they tried
What they credit
Also tried
Their words about each treatment
- some antibiotics · Not said
was on some antibiotics
In context ↗ - vitamin c and fluid iv · Not said
am doing vitamin c and fluid iv every other week for now to help
In context ↗ - high dose oral vitamin c · Not said
doing high dose oral vitamin c
In context ↗ - beta blockers · Not said
On beta blockers
In context ↗ - vitamin d · Not said
was low on vitamin d
In context ↗ - electrolytes and compresion · Helped
doing much better drinking lots of electrolytes and compresion all the things
In context ↗ - visible band · Helped
Got visible band which helps with pacing
In context ↗ - pacing · Not said
pacing with work is definitely the hardest
In context ↗ - resistance band exercise exercises · Helped
I did less than 10 minutes jogging total and like walking in there and I did feel better
In context ↗
Approaches: POTS medication
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| almost a year and a half before the post (about late 2024) | fell ill with a virus and never got back to normalAlmost a year and a half ago got sick with a virus and haven’t been the same.In context ↗ | |
| before the diagnosis | many symptoms, very hard to functionHad lots of symptoms became very hard to functionIn context ↗ | |
| since the POTS diagnosis about four months before the post | doing much better after diagnosis, electrolytes, compression and medicationssince the diagnosis doing much better drinking lots of electrolytes and compresion all the thingsIn context ↗ | Salt, electrolytes and fluids |
| at the time of posting | working with breaks, short jogging intervals, PEM less oftenI did less than 10 minutes jogging total and like walking in there and I did feel betterIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
do get PEM sometimes although it’s been getting better
In context ↗ - POTS & dysautonomia
finally got diagnosed with POTS 4 months ago and likely CFS
In context ↗
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