ME/CFS
Outcome unclear
ME/CFS light and noise sensitivity and deep PEM, tried earplugs and blackout curtains
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- May 2025
In their words
- Condition: ME/CFS
i hope others here chime in with their recommendations! would look forward to hearing opinions from other MECFS-havers!
In context ↗ - At worst: Moderate
shower chair is also the only way i get a weekly shower without passing out..
In context ↗
Summary
The Reddit user posted in ME/CFS forums in 2024 and 2025 about coping with light and noise sensitivity using blackout curtains, noise-cancelling headphones, Loop earplugs and white noise machines, and needing a shower chair to shower weekly without passing out. In deep PEM they could tolerate no noise at all. They also took Seroquel for psychosis and liked Wellbutrin, and said they have ADHD. No onset or overall course was described.
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What they tried
Also tried
blackout curtains· Helpednoise cancelling headphones (and noise canceling earbuds)· Helpedshower chair· Helpedwhite noise machines· HelpedLoops (Loop Switch earplugs)· Helpedmigraine cap· Helpedwellbutrin (bupropion)· Helpedseroquel· Not said
Their words about each treatment
- blackout curtains · Helped
blackout curtains are EVERYWHERE in my house. would definitely call them essentials!
In context ↗ - noise cancelling headphones (and noise canceling earbuds) · Helped
+1 for the noise cancelling headphones (and also noise canceling earbuds for when my head is too sensitive for the over the head ones!)
In context ↗ - shower chair · Helped
shower chair is also the only way i get a weekly shower without passing out..
In context ↗ - white noise machines · Helped
white noise machines for when the sound of electricity is too overwhelming!
In context ↗ - Loops (Loop Switch earplugs) · Helped
seconding Loops! the one you’re talking about, the Loop Switch, is my favorite! ... it has been incredibly helpful!
In context ↗ - migraine cap · Helped
i’ll put either a migraine cap (to help ‘shut my eyes off’ from stimulation too) ... it has been incredibly helpful!
In context ↗ - seroquel · Not said
i’m also on seroquel (but for psychosis)
In context ↗ - wellbutrin (bupropion) · Helped
i love my wellbutrin (bupropion)!
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2024-07-10 | earliest described state: needed blackout curtains and a shower chair to shower weekly without passing outshower chair is also the only way i get a weekly shower without passing out..In context ↗ | Moderate |
| 2025-05-14 | still in PEM at times, unable to tolerate any noise; taking Seroquel and Wellbutrinif i’m really deep in PEM & can’t handle any noise at alllIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if i’m really deep in PEM & can’t handle any noise at alll
In context ↗ - Light & noise sensitivity
noise canceling earbuds for when my head is too sensitive for the over the head ones!
In context ↗ - POTS & dysautonomia
shower chair is also the only way i get a weekly shower without passing out..
In context ↗