ME/CFS
Outcome unclear
ME/CFS limiting self-care and one chore a day; pacing and embroidery to relax
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
I find it hard to find structure while being flexible enough to make space for the fluctuations of CVS.
In context ↗ - At worst: Moderate
taking at least x amount of longer rest moments. (For me its 3x 45 min) ... doing one household thing, like laundry or cleaning.
In context ↗
Summary
Prairie 61306 described CVS limiting them to self-care tasks, a short walk and one household chore a day, with three 45-minute rests and a "one activity a day" rule. They paced with a visual timer, the ScreenZen app and their Garmin's Body Battery to avoid hyperfocus, and said embroidery, taken up in 2025, greatly helped them relax.
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What they tried
Also tried
one activity a day rule· HelpedGarmin watch Body Battery· HelpedScreenZen app· Helpedembroidery· Helped
Their words about each treatment
- one activity a day rule · Helped
I also use the "one activity a day" rule!
In context ↗ - Garmin watch Body Battery · Helped
I also use my Garmin watch purely for its Body Battery function. ... The Body Battery is surprisingly accurate
In context ↗ - ScreenZen app · Helped
I also use the ScreenZen app to not get sucked in my phone.
In context ↗ - embroidery · Helped
I started embroidery this year and it has been a tremendous help with relaxation.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | Onset of ME/CFS, date not givenmake space for the fluctuations of CVSIn context ↗ | Not stated |
| 2025-11-30 | Day built around self-care goals, rest breaks, pacing and a seated craft hobbygoing for a short walk ... taking at least x amount of longer rest moments. (For me its 3x 45 min)In context ↗ | Moderate |