Long COVID
Moderate → no benefitIll for 4.5 years
Long COVID, housebound and unable to work, no improvement from a new medication
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 4.5 years
- Last post
- Aug 2026
In their words
- At worst: Moderate
overall staying the same (moderately severe - can’t work and housebound)
In context ↗ - Now: No benefit
So overall staying the same (moderately severe - can’t work and housebound)
In context ↗
Summary
Petrel 16879 has had long COVID for about 4.5 years, with POTS, MCAS and long-standing gut problems. Gradual improvements in the first two years, which they credited to symptom treatment, did not hold; they fluctuated and deteriorated and remain moderately severe, unable to work and housebound. They had just begun a 0.25 mg first dose of a medication (half the doctor's recommended starting dose) with no change so far, and guanfacine 1 mg at night helped their adrenaline surges.
Ask Miruvor AI
What they tried
Their words about each treatment
- guanfancine · Helped
I have found guanfancine has helped. Currently on 1mg at bedtime. Considering trialing increasing but have to be wary of morning BP as I tend to be low in the morning.
In context ↗ - Mounjaro (tirzepatide) · No change
I trialled my first dose at half what the doc said, meaning I had 0.25mg (6 clicks). It’s about 36hrs in and I’ve not noticed any difference
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2023-2024 (first two years) | gradual improvements over the first two yearsI made some gradual improvements over the first two years which is likely due to treatment of symptomsIn context ↗ | Not stated |
| 2026-08-29 | fluctuating, deteriorated again; overall unchanged, houseboundSo overall staying the same (moderately severe - can’t work and housebound)In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have also had terrible gut issues since my first Covid infection
In context ↗ - Temperature regulation
Yes I think mine are part of an acute sympathetic NS surge or “adrenaline surge”.
In context ↗