ME/CFS
Mild → no benefitIll for 44 years
CFS for over 40 years, had to stop working, still limited; gentle gym gave no CFS benefit
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 44 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I have had CFS for 40 years.
In context ↗ - At worst: Mild
I got CFS 30 years ago and had to stop working.
In context ↗ - Now: No benefit
Exercise did not cure or even ameliorate my symptoms me but it did help me to manage them more effectively.
In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Valley 72116 has had CFS for over 40 years, dating from the early 1980s, when they had to stop working. On GP advice about 20 years ago they began a very gentle gym programme, stopping at the first sign of fatigue; it did not change the CFS itself but reduced depression and anxiety, lowered blood sugar and weight. They still pace carefully and remain limited, and had trouble re-establishing their routine after COVID lockdown.
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What they tried
Their words about each treatment
- exercise- swimming, walking and cycling · Worse
In earlier times I tried exercise- swimming, walking and cycling- but lasted only short periods before giving up through exhaustion.
In context ↗ - gym programme · Helped
It reduced the incidence and severity of depression and anxiety. It reduced my blood sugar levels, warding off prediabetic symptoms.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 1980s | CFS began; had to stop workingI got CFS 30 years ago and had to stop working.In context ↗ | Mild | |
| about 20 years ago | Started a very gentle gym programme on GP advice; depression, blood sugar and weight improvedmy doctor recommended I go to the gym-to forestall Type 2 diabetes and help with depression.In context ↗ | Mild | Everyday exercise and activity |
| 2026-06-17 | Still has CFS; exercise helps management but not the illnessExercise did not cure or even ameliorate my symptoms me but it did help me to manage them more effectively.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I feel tired the next day, I have done too much.
In context ↗ - Light & noise sensitivity
I have CFS with periods of sound sensitivity.
In context ↗ - Anxiety & low mood
It reduced the incidence and severity of depression and anxiety.
In context ↗