ME/CFS
Outcome unclear
ME/CFS, up only two hours a day, antihistamine eased one symptom
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Aug 2023
In their words
- At worst: Severe
(Rather than getting up for the two or so hours I normally do each day)
In context ↗ - Says they never had: POTS & dysautonomia
I do not have POTS though.
Summary
A person with ME/CFS had flares of fatigue and headaches during their periods, unchanged by birth control pills. A symptom, worst on their legs and after showers, was attributed to MCAS, and a daily antihistamine lessened it. They were up only about two hours a day and spent three days in bed after each vaccination; a whooping cough/tetanus booster also gave them a cold sore. They did not have POTS.
Ask Miruvor AI
What they tried
Also tried
generic antihistamine· HelpedBC pills· No changewhooping cough/tetanus/...something else booster· Worseflu shot and covid boosters· Worse
Their words about each treatment
- BC pills · No change
Editing to add it made no difference whether I was on BC pills or not.
In context ↗ - generic antihistamine · Helped
prescribed a generic antihistamine to take daily. it's not a cure-all but it's definitely helped lessen it
In context ↗ - whooping cough/tetanus/...something else booster · Worse
The whooping cough/tetanus/...something else booster was the worst - gave me a cold sore for the first time in my life
In context ↗ - flu shot and covid boosters · Worse
Had the flu shot and covid boosters as well. For me it was not too bad, in that I was able to organise to just be in bed for the three or so days after each shot.
In context ↗
Adverse events
- “The whooping cough/tetanus/...something else booster was the worst - gave me a cold sore for the first time in my life” In context ↗ Side effects
- “I was able to organise to just be in bed for the three or so days after each shot. (Rather than getting up for the two or so hours I normally do each day)” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
For me it's increased fatigue (how is that even possible!) and headaches.
In context ↗ - Mast cell (MCAS) & allergies
Yes, I get it so bad especially on my legs! Heat also makes it worse, and after showering it's almost too much to bear.
In context ↗