Very severe ME/CFS, now somewhat better with antivirals
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
very severe me/cfs to severe me/cfs
In context ↗ - At worst: Very severe
very severe me/cfs
In context ↗ - Now: Somewhat better
they've helped me to get from very severe me/cfs to severe me/cfs
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Quail 40473 had very severe ME/CFS and took valacyclovir for 4.5 years and valganciclovir for 2 years, which they credit with moving them from very severe to severe ME/CFS. The benefit plateaued some time ago and they kept taking the antivirals to avoid getting worse. Their doctor is concerned that the valganciclovir is taking a toll on their body and they are considering replacing or slowly stopping the drugs.
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What they tried
What they credit
Their words about each treatment
- valacyclovir · Helped
I've been taking valacyclovir for 4.5 years and valgancyclovir for 2 years they've helped me to get from very severe me/cfs to severe me/cfs
In context ↗ - valgancyclovir · Helped
valgancyclovir for 2 years they've helped me to get from very severe me/cfs to severe me/cfs
In context ↗
Approaches: Antivirals
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | very severe ME/CFS before antiviralsthey've helped me to get from very severe me/cfs to severe me/cfsIn context ↗ | Very severe |
| — | moved from very severe to severe ME/CFS on antiviralsI've been taking valacyclovir for 4.5 years and valgancyclovir for 2 years they've helped me to get from very severe me/cfs to severe me/cfsIn context ↗ | Severe |
| 2024-12-20 | effect plateaued, still on antivirals, doctor worried about lab resultsA while ago the effect plateaued and I have been taking them nonetheless to ensure it won't get worse again. Yet my lab reaults are concerning my doctor a bitIn context ↗ | Severe |
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