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Long COVID Severe → much betterIll 2 years before improving or writingNeeds ongoing treatment

Housebound nine months with long COVID, much better after an antidepressant and pacing

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
May 2024
In their words
  • Condition: Long COVIDBack in 2022 when this all started for me, food allergies and PEM were the first “WTF is wrong with me” sxs. In context ↗
  • At worst: SevereA year ago I couldn’t make it down the hallway, so there’s that. In context ↗
  • Now: Much betterI fluctuate between 75 and 90 percent recovery. Got there after a year, still have flares but nothing like that first year. In context ↗
  • Began after: COVIDBack in 2022 when this all started for me
Read from 9 of their posts and comments; links to the 7 this page draws on

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Summary

Ridge 65725 got long COVID in 2022 and was housebound for nine months, unable even to walk down the hallway. After about a year they reached 75–90% of their old self, crediting an antidepressant plus healthy eating, no alcohol, pacing, sleep hygiene and meditation. A binge-drinking relapse in January 2024 set them back, and stress caused a May 2024 flare; before that flare they had been at about 75–80% for a year. Supplements wasted money and caused an allergic reaction.

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What they tried

Also tried

supplements· Worse
Their words about each treatment
  • Welbuterin · Helped a lotWelbuterin was my ticket (mostly) out. If the effects of lexapro fade, it’s worth a try. In context ↗
  • rest/pacing · Helpedrest/pacing, minimizing stress (meditation), time, time, time. In context ↗
  • meditation · Helpedminimizing stress (meditation) In context ↗
  • cut out everything / diet control · HelpedI had to cut out everything before I got a handle on it. In context ↗
  • time · Helpedtime, time, time. In context ↗
  • Benadryl and Zyrtec · HelpedPre game Benadryl can be helpful ... slowly started adding foods back in with Benadryl, famotadine and Zyrtec in tow.
  • famotadine · HelpedAfter about 8 months I slowly started adding foods back in with Benadryl, famotadine and Zyrtec in tow. In context ↗
  • supplements · WorseThe supplements have done nothing much more than waste my money and give me another allergic reaction room to ponder over. In context ↗
  • sleep hygiene · HelpedTreating my body right (eating healthy, no booze, minimal sugar, sleep hygiene) In context ↗

Approaches: H1 antihistamines · H2 blockers · Diet · Mind-body practices · Other antidepressants · Pacing · Radical rest

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022Long COVID; housebound nine monthsI was house bound for 9 months in 2022 In context ↗Severe
2023reached 75-90% after a yearGot there after a year, still have flares but nothing like that first year. In context ↗MildBupropion (Wellbutrin)
January 2024relapse after binge drinkingI was house bound for 9 months in 2022 and relapsed in January of this year. Why you ask??? Binge drinking. In context ↗Not stated
2024-02-25back to 75% of old selfthankful that I am back at my 75% of old me status. A year ago I couldn’t make it down the hallway In context ↗MildBupropion (Wellbutrin)
2024-04-17fluctuating 75-90% recovery with flaresI fluctuate between 75 and 90 percent recovery. In context ↗Mild
2024-05-15flaring after anger; baseline 75-80%I have been at about a solid 75-80% for the last year. In context ↗Mild

Adverse events

  • “The supplements have done nothing much more than waste my money and give me another allergic reaction room to ponder over.” In context ↗ Allergic reaction / anaphylaxis

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisefood allergies and PEM were the first “WTF is wrong with me” sxs In context ↗
  • Mast cell (MCAS) & allergiesSkin products and detergents are a big one for me too In context ↗
  • Headaches & migraineall the usual PEM, overwhelming fatigue, RLS, acne (which I had never had in my life) headaches In context ↗

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