Severe ME/CFS for a few years, now somewhat better but still mostly in bed
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- a few years
- Last post
- May 2024
In their words
- Condition: ME/CFS
I’ve been severe for a few years ... Nowadays I don’t really get pem
In context ↗ - At worst: Severe
I’ve been severe for a few years ... I just lie in bed or on the sofa watching tv most of the day
In context ↗ - Now: Somewhat better
slowly improved my baseline over time ... I just lie in bed or on the sofa watching tv most of the day
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Kestrel 50277 wrote in May 2024 that they had been severe with ME/CFS for a few years and had slowly improved their baseline over time. They no longer really got post-exertional malaise, but still lay in bed or on the sofa most of the day and rarely left the house. Recent shopping trips and long drives left them more wiped out than the average person once home and maybe the next day too, without triggering PEM.
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What they tried
What they credit
Their words about each treatment
- time · Helped
I’ve been severe for a few years and slowly improved my baseline over time.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| a few years before May 2024 | severe ME/CFS baselineI’ve been severe for a few years and slowly improved my baseline over time.In context ↗ | Severe | |
| 2024-05-13 | slowly improved baseline; no PEM but still mostly lying down; recent shopping trips and long drives wipe them outNowadays I don’t really get pem ... Recently I’ve started to go out every now and then on big shopping trips or long drives.In context ↗ | Severe | Time and spontaneous remission |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Nowadays I don’t really get pem
In context ↗
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