ME/CFS
Outcome unclear
Bedbound when ignoring the body, now housebound with ME/CFS
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- May 2018
In their words
- Condition: ME/CFS
I didn't know it existed before I got it. And it's horrific to live with.
In context ↗ - At worst: Severe
I have an energy period of about 5 minutes then have to rest for 2 hours. And repeat. ... I'm currently housebound
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
The person described living with ME/CFS, saying they had been bedbound when they did not listen to their body and were housebound at the time of writing. They could manage about five minutes of activity before needing two hours of rest, and said that overdoing it left them unable to sit up. No onset trigger, illness duration, treatment or recovery was reported.
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Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | became ill with ME/CFSI didn't know it existed before I got it.In context ↗ | Not stated |
| — | bedbound after not listening to bodyI was bedbound when j didn't listen to my body.In context ↗ | Severe |
| 2018-05-08 | currently houseboundI'm currently housebound but I was bedbound when j didn't listen to my body.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have an energy period of about 5 minutes then have to rest for 2 hours. And repeat. Otherwise I wake up not being able to even sit up.
In context ↗ - Muscle weakness
not being able to even sit up
In context ↗