Miruvor
Sign up
ME/CFS Moderate → much betterIll 10.5 years before improving or writing

Health in shambles as a teen with ME/CFS, now much better with their mother's support

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
10.5 years
Last post
May 2023
In their words
  • Condition: ME/CFSI was officially diagnosed at 14 but I’m pretty sure it came around at 12/13 In context ↗
  • At worst: ModerateI’d just started secondary school and ended up having to be homeschooled as my health was in shambles. In context ↗
  • Now: Much betterit did get better for me ... I’m 23 now and I still compare, I still struggle In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

Diagnosed with CFS at 14, Osprey 54711 dates their onset to age 12 or 13, when they started secondary school and were homeschooled because their health was in shambles. They describe a lonely, painful adolescence watching their peers. By 23 they had been to college, made friends, learned to drive, met a partner and helped run a website design business, though they still struggle and compare themselves with others. They credit their mother's support.

Ask Miruvor AI

Asking aboutOsprey 54711’s story

Their path

Very severeSevereModerateMildNear normalRecoveredonset2 y4 y6 y8 y10 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
age 12/13CFS began around the start of secondary schoolI’m pretty sure it came around at 12/13, so same age as you! In context ↗Moderate
age 14health in shambles, had to be homeschooled, lost friendsI’d just started secondary school and ended up having to be homeschooled as my health was in shambles. In context ↗Moderate
after that period, before age 23went to college, made friends, learned to drive, met a partner, taught themselves website designit did get better for me. It does get better. In context ↗Mild
2023-05-17age 23, running a website design business with their sister but still strugglingI’m 23 now and I still compare, I still struggle In context ↗Mild

Ask Miruvor AI

Asking aboutOsprey 54711’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime