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ME/CFS Severe → no benefit

ME/CFS after five spine surgeries, still lucky to get an hour of productive time a day

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Aug 2026
In their words
  • Condition: ME/CFSI didn’t end up with cfs until I started getting spine surgeries to fix some bad discs. In context ↗
  • At worst: SevereSo 5 surgeries over 5 years and I’m lucky if I can get an hour of productive time each day. In context ↗
  • Now: No benefitEach surgery seemed to suck the life out of me more. So 5 surgeries over 5 years and I’m lucky if I can get an hour of productive time each day. In context ↗
  • Began after: injury or surgeryI didn’t end up with cfs until I started getting spine surgeries to fix some bad discs. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Crocus 43351 had general anxiety long before developing CFS, which they date to a series of spine surgeries to fix bad discs. Five operations over five years each seemed to suck the life out of them further, and they say they are now lucky to get an hour of productive time each day.

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What they tried

Also tried

spine surgeries· Worse
Their words about each treatment
  • spine surgeries · WorseEach surgery seemed to suck the life out of me more. So 5 surgeries over 5 years and I’m lucky if I can get an hour of productive time each day. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—CFS began after starting spine surgeries for bad discsI didn’t end up with cfs until I started getting spine surgeries to fix some bad discs. In context ↗Not stated
—five spine surgeries over five years left them with about an hour of productive time a dayEach surgery seemed to suck the life out of me more. So 5 surgeries over 5 years and I’m lucky if I can get an hour of productive time each day. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI had general anxiety long before cfs In context ↗

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