ME/CFS two years, weeks in bed with fatigue and migraines, no improvement
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
I’ve had cfs for around 2 years now
In context ↗ - At worst: Severe
I’ll spend weeks in bed from the fatigue and migraines
In context ↗ - Now: No benefit
I pace myself accordingly yet I still get super ill and weak
In context ↗
Summary
Prairie 45897 had had CFS for around two years by September 2019 and said it had taken away their social life and education. They paced themselves but still became ill and weak, spending weeks in bed with fatigue and migraines. Daily head pain, which doctors called severe migraine, went unexplained after an MRI and other tests, and they described frequent suicidal thoughts. Replies gave them hope, and they said they would continue living.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- pacing · Not said
I pace myself accordingly yet I still get super ill and weak
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2017 | CFS beganI’ve had cfs for around 2 years nowIn context ↗ | Not stated |
| 2019-09-07 | weeks in bed from fatigue and migraines; education and social life lostI pace myself accordingly yet I still get super ill and weak and I’ll spend weeks in bed from the fatigue and migrainesIn context ↗ | Severe |
| 2019-09-07 | decided to keep living; no improvement reportedI will continue on living as these replies have given me hopeIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I’ve had daily head pains and strange sensations in my brain
In context ↗ - Muscle weakness
I still get super ill and weak
In context ↗ - Anxiety & low mood
I’m considering suicide more and more frequently
In context ↗