ME/CFS
Moderate → no benefit
Moderate ME/CFS trending severe and housebound, POTS worse, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2025
In their words
- Condition: ME/CFS
I am recently diagnosed, moderate (although slowly trending towards severe).
In context ↗ - At worst: Moderate
he loves that I’m housebound he would never leave my side if given the chance
In context ↗ - Now: No benefit
my ME being worse is causing my POTS to somehow be worse than ever
In context ↗
Summary
Wave 81522 was recently diagnosed with ME/CFS and described themselves as moderate but slowly trending towards severe and housebound in August 2025. As their ME worsened their POTS worsened beyond what they thought possible, despite a beta blocker that had helped before. Cannabis was basically the only medication that helped, and they applied for a fully remote job as the household needed the income.
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What they tried
Also tried
Their words about each treatment
- beta blocker · Helped
I was worse before I saw my first cardiologist and got on a freaking beta blocker.
In context ↗ - cannabis · Helped
which is basically the only med that helps me
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | onset of ME/CFS, before diagnosis; was the high earnerI am recently diagnosed, moderate (although slowly trending towards severe).In context ↗ | Not stated |
| 2025-08-12 | ME worsened and POTS became worse than evermy ME being worse is causing my POTS to somehow be worse than everIn context ↗ | Moderate |
| 2025-08-16 | housebound, applied for a fully remote jobhe loves that I’m houseboundIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
my POTS to somehow be worse than ever
In context ↗