ME/CFS
Outcome unclear
ME/CFS pacing with Visible band: helpful overexertion alerts, but logging exhausting
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
The visible band taught me so many pacing lessons.
In context ↗
Summary
A person with ME/CFS wrote about using the Visible band to track pacing, having it for about ten months. Real-time data showing overexertion was helpful, but constant data entry was exhausting on some days, the band stopped working, and they found it too expensive, so they asked for a refund. They still hold energy back, spending pushes on their children's birthdays, Christmas and family events.
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What they tried
Also tried
Their words about each treatment
- Visible · Helped
I loved it to start but then it stopped working ... real time data that showed I was over exerting was incredibly helpful
In context ↗
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Don't push yourself unless you're prepared to suffer the consequences
In context ↗